|
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
You need to upgrade your Flash Player
|
Review BACK TO LIST
|
|
|
| Katie Clapp, President, FRAXA - The Fragile X Research Foundation |
- President, FRAXA - The Fragile X Research Foundation
- Co-Founder, FRAXA - The Fragile X Research Foundation
- Mother
|
|
Website: http://www.fraxa.org
Biography:
Katie Clapp is President and co-founder of FRAXA – The Fragile X Research Foundation, a grass-roots, parent-run nonprofit organization which aims to find a cure for Fragile X syndrome, the most common inherited cause of mental impairment worldwide. In 1994, after her son, Andy was diagnosed with Fragile X, Katie, her husband Michael Tranfaglia, MD, and a third parent together founded FRAXA to accelerate research aimed at finding specific treatments and a cure for Fragile X. FRAXA has funded over $15 million dollars in grants and fellowships at universities around the world.
Katie has a B.A. in History from Harvard and a Masters degree in Computer Science from the University of North Carolina at Chapel Hill. She worked as a software engineer and adjunct professor in computer science before becoming involved with Fragile X research. She has won a number of prizes for her work with FRAXA, including a 2003 Community Hero award from the American Red Cross and a Glamour Magazine Women at their Best award. She is also a member of the board of directors of Opportunity Works, which provides services for developmentally disabled adults in Massachusetts. The Books that have changed my life ...
Book #1
Title: Gone with the Wind
Author: Margaret Mitchell
Topic: Perseverance, Relationships
How it influenced my life: This was the first time (but not the last) that I read a book that totally absorbed me in another world. For three days I didn't put it down, except to grab some food and a few hours of sleep. Everyone should have that pleasure. |
|
|
Book #2
Title: Family Pictures
Author: Sue Miller
Topic: Relationships, Perseverance,
How it influenced my life: Sue Miller tells an engrossing story of what it is like to be part of a special needs family. A mother, father, sister and brother all share their experiences of living with a boy severely disabled with autism and learning problems. It's heartbreaking, riveting, and uplifting. My son has Fragile X syndrome, and this book let me know I wasn't alone. |
|
|
Book #3
Title: Guns Germs and Steel
Author: Jared Diamond
Topic: Environment, Business, Money-Finances, Quality of Life
How it influenced my life: Did you ever wonder how world societies became so different and unequal? Can we ever stop wars from happening and end poverty? Through fascinating stories from far-flung places and times, Jared Diamond's book answers these questions in a way I'd never thought of before. It's a sad and yet very hopeful book - and an important one for anyone who is working in the nonprofit world. |
|
|
My Charity of choice:
FRAXA - The Fragile X Research Foundation - http://www.fraxa.org
BACK TO LIST
|
|
|
|
